Privacy Policy
Last Updated: June 2 2026
Privacy Policy
1. Introduction
Pituitary Ireland CLG ("Pituitary Ireland", "we", "us", or "our") is committed to protecting and respecting your privacy.
This Privacy Policy explains how we collect, use, store, and protect your personal information when you visit our website, contact us, participate in our activities, subscribe to our communications, make donations, or otherwise engage with Pituitary Ireland.
We are committed to processing personal data fairly, lawfully, and transparently in accordance with the General Data Protection Regulation (GDPR), the Data Protection Act 2018, and other applicable Irish data protection laws.
By using our website, you acknowledge that you have read and understood this Privacy Policy.
2. Who We Are
Pituitary Ireland CLG is a nonprofit company limited by guarantee established to support people affected by pituitary and endocrine gland conditions, their families, carers, and healthcare professionals.
Company Registration Number (CRO): 77763
Registered Address:
Pituitary Ireland CLG
Carmichael Centre
North Brunswick Street
Dublin 7
D07 RHA8
Ireland
Website: www.pituitaryireland.ie
Email: robert@pituitaryireland.ie
Telephone: 085 711 3927
3. Your Privacy Matters
We recognise the importance of protecting your personal information and are committed to keeping it safe and secure.
We will only collect and use personal information where we have a lawful basis for doing so and where it is necessary to support our charitable activities and services.
We do not sell, rent, or trade your personal information to third parties.
4. What Information We May Collect
Depending on how you interact with us, we may collect:
Personal Information
Name
Email address
Telephone number
Postal address
Information you provide when contacting us
Website Information
IP address
Browser type and version
Device information
Pages visited on our website
Website usage data collected through cookies and analytics tools
Membership, Volunteer and Event Information
Where applicable, we may collect information relating to:
Membership registrations
Volunteer applications
Event registrations
Survey responses
Feedback and enquiries
We will only collect personal information that is relevant and necessary for the purpose for which it is being collected.
5. How We Use Your Information
We may use your information to:
Respond to enquiries and requests
Provide support and information services
Administer events and support groups
Send newsletters and updates where you have consented
Improve our website and services
Maintain records of our activities
Meet legal, regulatory, and governance obligations
6. Lawful Basis for Processing
We process personal information on one or more of the following lawful bases:
Your consent
Performance of a contract or service requested by you
Compliance with a legal obligation
Our legitimate interests as a charitable organisation, provided those interests do not override your rights and freedoms
7. Sharing Your Information
Pituitary Ireland does not sell, rent, or share your personal information with other organisations for marketing purposes.
We may share information only where necessary with:
Service providers supporting our website, email, or administrative systems
Professional advisers where required
Regulatory authorities where legally required
Any such sharing is carried out in accordance with applicable data protection laws.
8. How Long We Keep Your Information
We will retain personal information only for as long as necessary to fulfil the purposes for which it was collected or to meet legal, accounting, governance, or reporting requirements.
When information is no longer required, it will be securely deleted or anonymised.
9. Data Security
We take appropriate technical and organisational measures to protect personal information against unauthorised access, loss, misuse, alteration, or disclosure.
While we strive to protect your information, no method of electronic transmission or storage can be guaranteed to be completely secure.
10. Your Rights
Under GDPR, you have the right to:
Access your personal information
Request correction of inaccurate information
Request deletion of your personal information
Restrict or object to processing
Request transfer of your data where applicable
Withdraw consent at any time where processing is based on consent
Lodge a complaint with the Data Protection Commission
11. Cookies
Our website may use cookies and similar technologies to improve functionality and understand how visitors use our website.
Further information can be found in our Cookie Policy.
12. Links to Other Websites
Our website may contain links to third-party websites, including healthcare organisations and patient support groups.
Pituitary Ireland is not responsible for the privacy practices or content of external websites. We encourage you to review their privacy policies before providing any personal information.
13. Changes to This Privacy Policy
We may update this Privacy Policy from time to time to reflect changes in legal requirements or our activities.
Any updates will be posted on this page with a revised "Last Updated" date.
14. Contact Us
If you have any questions about this Privacy Policy, wish to exercise your rights, or have concerns about how your personal information is handled, please contact us:
Pituitary Ireland CLG
Carmichael Centre
Email:
Telephone: 085 711 3927
15. Right to Complain
If you are unhappy with how we process your personal information, you have the right to lodge a complaint with:
Data Protection Commission (DPC)
21 Fitzwilliam Square South
Dublin 2
D02 RD28
Ireland
Website: www.dataprotection.ie