Awareness Month

No Need to DI ! 

October is Pituitary Awareness Month and this year we are focusing on campaigning to change the name of diabetes insipidus.


We are working to change the name to

pituitary insipidus - desmopressin dependent (PIDD)

The word diabetes causes confusion and often leads people, including medical professionals, to assume the patient has diabetes mellitus. Many DI patients have had experiences of medical professionals making this error and trying to treat them incorrectly. In the past few years there have been a couple of fatalities due to this confusion and it needs to stop.

What are we doing?

We are working with an incredible team of dedicated endocrinologists including, the Society for Endocrinology and many others. The work has already been going for months and will be continuing for the foreseeable future as this is no small task. There are lots of things going on behind the scenes and lots of plans in place for the next few months so we look forward to sharing these with you soon.

We are currently working on:

  • Updating our own resources with the new name. The change of name starts with familiarity and the more PIDD is used, the more people will feel comfortable with it and recognise it

  • Running a petition to back our work with signatures from patients, carers, friends, families, doctors, nurses and anyone else

  • Publishing an article in The Endocrinologist

  • Releasing a new fact sheet – ‘About Pituitary insipidus - desmopressin dependent (PIDD)’

  • We will be sharing stories, articles and more throughout October so keep an eye on this page and our social media channels

How can you help?

The most important thing you can do is sign our petition here* and share it far and wide! The more signatures we have, the more power we have for our campaign. Don’t forget to use #NoNeedToDI when sharing on social media

Please remember to like, comment and share to increase our reach!

Petition-share no need to DI .png



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Telephone: +353861932611

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